About the
EYE-RD Global Registry

As of June 30, 2025, enrollment has closed for this registry and we are no longer accepting additional participants. Study follow-up activities for enrolled participants will continue for up to a year.

A registry is a type of clinical research designed to record information about participants and their health data over time. Like research studies, the goal of a registry is to inform the development of future treatments, but registries typically last longer. No visits, tests, or procedures beyond your or your child’s standard care are required. Participants’ health information from their regularly scheduled eye doctor appointments will be collected for research purposes for this registry. Participants will also be asked questions to see how their IRDs affect their lives. Through clinical research, we can envision a brighter future for IRDs together.